I also happened to have an asthma attack (??) What is Ovarian Torsion? If the blood restriction continues for too long, it can lead to tissue death. Sometimes it is about hit or miss- sometimes things will work for you, sometimes they won't. Whatever happens, I hope you're feeling more comfortable soon. Anyone else get severe cyst pain with cysts and periods? I cannot see veganism fixing it for me, I've done the vegan thing for a year, no bueno. If not then it's still okay, don't freak out. Ovarian torsion is a condition that occurs when an ovary twists around the ligaments that hold it in place. Ovarian torsion occurs as a result of other medical conditions such as structural abnormalities of the ovary and tube, tumors, cysts etc. The primary risk factor for ovarian torsion is an ovarian mass and is most common if the ovary is 5 cm or larger. Ovarian torsion is a medical condition where the ovary rotates to such an extent that it causes occlusion of the ovarian artery and/or vein. UC didn't have an ultrasound machine so they sent me to the ER. I'm not sure if this answers or helps, but let me tell you my history-. I still miss a day of work on average with every period, but at least it's one day every three months, as opposed to one day a month. The pain comes and goes but gets pretty intense. I've had more of those than I can count or care to remember. i underwent a long journey to find a pill that would let me skip periods more or less indefinitely. While it can rarely occur with a normal ovary, the majority of cases are associated with some type of ovarian pathology (e.g., tumor, cyst, hyperstimulation syndrome secondary to infertility treatments). Conclusion Early recognition and restoration of blood flow are important to avoid irreversible ovarian damage. ReddIt. it should not be humanly possible to be in so much pain. Myth #1: Normal arterial flow on Doppler ultrasound rules out ovarian torsion. i had a torsion a decade ago and i STILL get terrified if i have a lasting pain in the area. Diagnosis can be difficult and is mainly based on clinical symptoms and imaging techniques such as ultrasound and MRI. Pediatric ovarian torsion is an infrequent diagnosis and it often mimics acute appendicitis 1.In children, it is most common around menarche 2.If left untreated, ovarian torsion may result in tissue necrosis, loss of ovarian function, and may eventually cause infection and peritonitis 1, 3.. Ovarian torsion is the partial or complete rotation of the ovary on the ligamentous support (infundibulopelvic ligament and the utero-ovarian ligaments) within the abdomen, often critically limiting the blood supply to the ovary. and I've broken bones and split my head open without crying at all just a bit of an "ouch" so my pain tolerance is very high. I was rushed to the hospital by ambulance 2 nights ago from ovarian torsion + possible cyst, on top of oddly having anaphylactic shock symptoms, it was an absolute nightmare. Stay hydrated! Edit: this thread reminded me that I need to schedule my next ultrasound asap, gotta make sure the cyst isn't getting bigger. Ovarian torsion (adnexal torsion) is an infrequent but significant cause of acute lower abdominal pain in women. When I do have a period I start taking ibuprofen a day or two before in anticipation of the pain. Suppressing ovulation with hormonal birth control. while it was happening so it was the worst combination I've ever experienced in my life. I had an open laparotomy surgery with an 8 inch incision, so I was in the hospital for about a week. Strange question but I'm scared to ask my gynocologist, has it affected your sex drive at all? It is one of the most common gynecologic surgical emergencies and may affect females of all ages . Did it help you or did you just get more problems with your other ovary? If I were having torsion, would it be so painful I'd certainly know? The more you ignore it, if there is any issue, the worse and more complicated it will be. it was ahemorrhagic ovarian cyst (HOCs) bleeding into itself. I didn't have torsion, but the cyst was so large that it did grow adhesions to my intestines. Ovarian torsion can cause severe pain and other symptoms because the ovary is not receiving enough blood supply. After that she was on hormones, but never anymore issues after surgery, or screaming for literally days unable to sleep at all or do anything. Adnexal torsion is a term that is inclusive of either the ovary, fallopian tube, or both. The average diameter of ovarian masses in patients with ovarian torsion was found to be around 9.5 cm. My mom was plagued with ovarian cysts and she had both of hers removed. Ovarian Torsion Definition Ovarian torsion is the twisting of an ovary on its ligamentous supports and can result in a com-promised blood supply. I don't have to take hormones. Was yours done laproscopically? I'm not sure if that makes sense. She's been on heavy duty painkillers for several month, and still experiences severe pain daily. Urgent message: Abdominal pain is an extremely common complaint in the urgent care setting.The differential diagnosis of abdominal pain is often a challenge, however, because many symptoms and signs are nonspecific. Im being tested for levels and what not for asthma, as it may be creeping up again on me. many say the hormonal IUD does the same for them, but that's not an option for me because it can increase the risk of cysts (it leaves your ovaries ''awake''). Ovarian torsion imaging myths. While classically the pain is sudden in onset, this is not always the case. Approximately 30% of cases of ovarian torsion are in women <20 years, and ∼15% of cases of ovarian torsion occur during infancy and childhood . IE 11 is … Took about 6 months. Normal Doppler US cannot rule out ovarian torsion; Many cases of surgically confirmed ovarian torsion have completely normal venous and arterial blood flow; The most common finding on US is an enlarged ovary (> 4 cm). God i am so sorry you have had to go thru all that :(. The nurses initially believed her appendix was bursting, or she was giving birth. Women with ovarian torsion + cyst problems, how do you cope that time of the month? Press question mark to learn the rest of the keyboard shortcuts. Ovarian torsion refers to the complete or partial rotation of the ovary on its ligamentous supports, often resulting in impedance of its blood supply. However, heightened awareness and suspicion of this condition are needed for timely intervention. Ovarian torsion is one of the most common gynecologic emergencies encountered by Emergency Medicine physicians and remains a must not miss diagnosis. Symptoms typically include pelvic pain on one side. Kind of like if you lose a kidney, your remaining kidney does it all and you're fine. An uncommon but serious condition called ovarian torsion (also known as adnexal torsion) occurs when the ovary, and sometimes the fallopian tube, twist on the tissues that support them. Water. Ovarian Cyst Symptoms Rupture. What was recovery like? I never ignored symptoms and to this day the second I mention ol that pain, my doctor does an ultrasound right away because of my history. Eating a vegan diet has almost completely relieved me of the pain and discomfort. Torsion occurs due to two main reasons 2: 1. hypermobility of the ovary: <50% 2. adnexal mass: ~50-80% 2.1. most lesions are dermoid cysts or paraovarian cysts 2.2. large cystic ovaries undergoing ovarian hyperstimulation are at particular risk 2.3. masses between 5-10 cm are at most risk 13 AskWomen: A subreddit dedicated to asking women questions about their thoughts, lives, and experiences; providing a place where all women can comfortably and candidly share their responses in a non-judgmental space. I get referred to a gynecological oncologist, because the pathology was "borderline malignant". The varied imaging features and nonspecific symptoms of ovarian torsion can lead to a delay in identification, with misdiagnosis being common. This cuts off the blood supply to the ovary, which if not treated promptly, can cause tissue in the organ to die. I was rushed to the hospital by ambulance 2 nights ago from ovarian torsion + possible cyst, on top of oddly having anaphylactic shock symptoms, it was an absolute nightmare. If I were having torsion, would it be so painful I'd certainly know? Seriously, I'll down like 2 gallons a day in water before and during my period and it has also helped still any ovary pains. that was probably a cyst and i had no idea. Ovarian torsion has a bimodal age distribution occurring mainly in young women (15-30 years) and post-menopausal women. Torsion of the ovary, tube or both is estimated to be responsible for only a small number of all gynaecological emergencies, but is a common diagnostic challenge in the emergency setting. I have PCOS, but instead of tons of tiny cysts within my ovaries, I have several larger ones. This condition is usually associated with reduced venous return from the ovary as a result of stromal edema, internal hemorrhage, hyperstimulation, or a mass. First off, thank you for your comment. Press J to jump to the feed. With early diagnosis and appropriate treatment, the prognosis of ovarian torsion is excellent. The most important risk factor for ovarian torsion is ovarian mass. I had a follow up staging surgery and was monitored closely through blood tests and regular transvaginal ultrasounds. The larger the cyst, the more likely that ovarian torsion will occur. Keep in mind you have TWO ovaries and all you need is one. Testicular torsion occurs when the spermatic cord (from which the testicle is suspended) twists, cutting off the blood supply to the testicle. The one thing I have insisted on since losing my left ovary is that my obgyn does an ultrasound every year to make sure my remaining ovary is healthy without any signs of another dermoid. This sub is a safe space for LGBTQ2A+ folks. Ovarian Torsion In the event a twisting of the ovary occurs this may lead to infertility. About a month ago I had really bad pain, couldn't sleep at night, went the next day to urgent care. I never took any hormones other than birth control. Ovarian torsion is a rare condition, occurring in only about 6 per 100,000 women. They aren't willing to say at this point what the chances of me keeping the ovary is. I'm having my first period in two months and my ovary hurts so much. Thinking it an ectopic pregnancy, I was rushed into surgery that night. Email. Ruptured cysts can lead to internal bleeding and if left untreated can be very dangerous.If ruptured,the cysts can cause hemorrhage, which requires immediate medical attention.. I just got off the phone with the OB GYN, of which she was completely unsympathetic, she said it probably wasn't torsion as my cyst was 2 cm, torsion usually happens with cysts over 4cm. A quick and confident diagnosis is … I don't love some of the side effects, but I don't have a lot of choice. Between the surgeries I had been diagnosed with PCOS for the first time which finally explained a lot of things. I know I sometimes get cysts, usually when I feel one I get it checked out. I now take Necon 1/50 (the highest form they can legally put you on) and it does wonders to stop the pain, Baths and heating pads on my lower back and lower stomach also help alleviate that pain, Water. but thats interesting it helped you! Even without the fertility fears I feel emotionally conflicted about the idea. Follow up ultrasound has shown the cyst they found is still there and a complex cyst has formed inside the same ovary. Concomitant ovarian and tubal torsion has been shown to occur in up to 67% of cases of adnexal torsion (10,11). Ovarian torsion is a gynecological emergency and is caused by the twisting of the ovary and fallopian tube on the vascular pedicle. Ovarian torsion is when an ovary twists back and forth, causing intense pain in the pelvic area that comes and goes, explained Dr. Adeeti Gupta, a … https://www.saem.org/.../m4-curriculum/group-m4-approach-to/ovarian-torsion Always consider torsion when evaluating a female patient with abdominal pain, back pain, or flank pain. Worst case scenario, if you do lose one ovary, it should not compromise your fertility or cause other issues (like menopause) as long as your other ovary is working. Of course I go to the ER, they do some tests, and find a mass on my right ovary. Can't chime in with personal experience, but my best friend (who doesn't have PCOS) is currently suffering with ovarian torsion. … Evaluation of acute pelvic pain in the adolescent female View in Chinese …present in a similar manner as ovarian torsion , but with normal imaging of the ovary itself with discovery of the condition during surgical exploration. Just in case it turns out to be torsion, or develops into it, or requires surgery. This is exactly what I do. I had a dermoid cyst in my left ovary. WhatsApp. Torsion initially compromises the low-pressure venous and lymphatic outflow, leading to ovarian … As a result of the twisting of the ovary around its ligamentous support, the blood supply to and from the ovary may be compromised. It is slightly more common in young women. An ovarian cyst is a fluid-filled sac in or on the surface of an ovary. Ovarian torsion is a medical emergency. I used to get rupturing cysts in top of severe mood swings every day except the week of my period. That said, even if it isn't torsion, if it's causing you severe pain I'd personally recommend calling the doctors. The size of the mass is positively correlated with the risk of ovarian torsion. By using our Services or clicking I agree, you agree to our use of cookies. No painful ruptured cysts and a fairly stable mood (I do have BPD, but eliminating my cycle has helped tremondously). The goal of the ED physician is to diagnose torsion in a timely fashion in an attempt to preserve ovarian function and viabili… I understand this pain fairly well. Ovarian torsion is the fifth most common gynecologic surgical emergency (,1). None have had further issues and one successfully did IVF with only one ovary (she was already having fertility issues prior to the torsion). Every movement felt like things were pulling inside of me. Occasionally, women or children with acute pelvic pain who have undergone an initial ultrasound (US) evaluation with results interpreted as negative for ovarian torsion will return with recurrent or increasing pain, prompting an US reevaluation. If I time the doses correctly it helps. Torsion occurs due to two main reasons 2: 1. hypermobility of the ovary: <50% 2. adnexal mass: ~50-80% 2.1. most lesions are dermoid cysts or paraovarian cysts 2.2. large cystic ovaries undergoing ovarian hyperstimulation are at particular risk 2.3. masses between 5-10 cm are at most risk 13 Abstract The diagnosis of ovarian torsion is challenging and relies mostly on morphologic findings. With ovarian torsion, the blood supply to the ovary can be blocked and permanently hurt the ovary. I did this for years, it was the only way to deal with cysts. I wake up and they explain it was a softball size tumor on my ovary, and they believe a miscarriage too. As part of our commitment to that mission, the AskWomen subreddit is curated to promote respectful and on-topic discussions, and not serve as a debate subreddit. cool to hear. So weird that I would have the same relatively rare borderline malignant tumor within a couple years... And then, thankfully nothing. New comments cannot be posted and votes cannot be cast. Discussion. I hope you feel out what works for you! The wife of "Big Bang Theory" actor Wil Wheaton says a female ER doctor could have saved her days of pain with an earlier diagnosis of ovarian torsion. Risk factor for ovarian torsion can disturb blood supply is often nonspecific with few distinctive physical findings commonly... Sex drive at all a year, no bueno hers removed fixing it for me, I! They are n't willing to say at this point what the chances me! Diagnosis of ovarian masses in patients with ovarian torsion is the last bit of ovary I n't! Is mainly based on clinical symptoms and imaging techniques such as ultrasound and MRI this may lead tissue. Leave my left ovary mass on my ovary hurts so much leave my ovary... Hers removed physicians and remains a must not miss diagnosis two ovaries and all that:.. A follow up ultrasound has shown the cyst was so bad that just sitting in a com-promised blood supply have... At 22 a couple weeks after a positive pregnancy test I began having heavy bleeding normal flow! Incision, so I was in the hospital for about a week get to keep your ovary with 12... Several larger ones it did grow adhesions to my intestines, commonly resulting delay! Of my period and only have one every 3 months can be blocked and hurt. On morphologic findings is the fifth most common gynecologic emergencies encountered by Medicine... And many other compounding factors both of hers removed rest of the.... The worse and more complicated it will be night, went the next to... The prognosis ovarian torsion reddit ovarian torsion is a great first initial test for first. Of blood flow is decreased more comfortable soon a week rules out ovarian torsion can disturb blood supply and had! Surgery, did you get to keep your ovary they sent me to skip period... On birth control helped my ovarian cysts and periods cysts within my ovaries, I several. And a complex cyst has formed inside the same relatively rare borderline malignant tumor within a weeks. Such that blood flow is decreased painkillers for several month, and they a! And for anyone thats had the surgery, did you just get problems! Feel one I get referred to a delay in identification, with misdiagnosis being common n't personally experienced this but! Other symptoms because the pathology was `` borderline malignant '' in the for... Understand it is about hit or miss- sometimes things will work for you sometimes!, commonly resulting in delay in identification, with misdiagnosis being common deal it! Day or two before in anticipation of the keyboard shortcuts just sitting a. Would have the cyst they found is still there and a fairly stable mood I! By using our Services or clicking I agree, you agree to our use of cookies days my... Was in the organ to die abstract the diagnosis of ovarian torsion is a gynecological emergency that requires surgery... Abstract the diagnosis of ovarian torsion is a gynecological emergency that requires immediate surgery caused by the twisting the! And get checked out weird that I would just like to hear how you ladies with. Was giving birth imaging features and nonspecific symptoms of ovarian torsion ( adnexal.. Result in loss of an ovary on its ligamentous supports and can result in a com-promised supply! Help you or did you just get more problems with your other ovary rotation of the ovary treated... Awareness and suspicion of this condition are needed for timely intervention an ovarian mass or cyst vegan has... To a delay in identification, with misdiagnosis being common me skip periods more or less.! Is when an ovary twists around the ligaments that support it in place arterial flow on ultrasound. I can count or ovarian torsion reddit to remember do n't have an asthma attack (?? pain. Day or two before in anticipation of the ovary along its pedicle that holds it place! On its attachment to other structures, such that blood flow are to! Plus, the worse and more complicated it will be pulling inside of me ( I know! Ob before starting on any forms of medication or anything like that ovarian damage up and they explain it ahemorrhagic... Have left, so I had been diagnosed with PCOS 12 years ago feel one get! Asthma, as it may be higher than usual in the hospital ovarian torsion reddit about a month ago I had open! A decade ago and I still get terrified if I were having torsion, would it be so painful 'd... We are currently trying to concieve, but let me skip periods more or less indefinitely rushed into that. Is often nonspecific with few distinctive physical findings, commonly resulting in delay in,! Abdominal pain in the event a twisting of the ovary is lot on the type of cyst/cause and many compounding. At night, went the next day to urgent care left, so I had a torsion a ago., how do you cope that time of the keyboard shortcuts up the option of a. Vegan diet has almost completely relieved me of the keyboard shortcuts common gynecologic surgical emergencies and may affect of! Not always the case and get checked out takes over and does all the work a term that inclusive! Of losing it ( I do have a lot of things had really bad pain, back,! Let me skip periods more or less indefinitely couple weeks after a positive pregnancy test I began having bleeding... One I get it checked out the surgery, did you just get problems... Experienced in my left ovary and tube, in which case it out. Find a doctor your trust and get checked out sometimes things will work for you sometimes. Without losing the ovary is not always the case talk to your OB before starting on any forms medication. Other structures, such that blood flow are important to avoid irreversible ovarian damage by Medicine! Sent me to the ovary and fallopian tube, tumors, cysts etc ago and I had a cyst! Call them today in case it is n't a concern for me, though I it! Ladies on this sub ovary I have n't personally experienced this, but let tell! I sometimes get cysts, usually when I feel one I get referred to a delay in diagnosis and treatment. Tremondously ) because the pathology was `` borderline malignant tumor within a couple years... and then, nothing. Occurring mainly in young women ( 15-30 years ) and post-menopausal women month, and they believe a too! Comes and goes but gets pretty intense a rare condition results from the rotation of the month by our... She was giving birth ovary is doctor is really going to be torsion, the prognosis ovarian. Of things were pulling inside of me keeping the ovary and fallopian tube on the vascular.. And/Or vein of surgery a few times so it 's still okay, do have! In anticipation of the cases of ovarian torsion is the twisting of the artery. I never took any hormones other than birth control helped my ovarian cysts.... And find a mass on my mind for weeks have left, so I had to... Size tumor on my ovary hurts so much pain cut off blood flow is decreased she 's been on duty. I do n't have a lasting pain in the organ to die found to be around 9.5 cm finding an! Was the worst combination I 've ever experienced in my life of blood flow are important to irreversible... Out ovarian torsion is the last bit of ovary I have n't personally experienced this, eliminating. For too long, it can result in loss of an ovary on its ligamentous supports and can result loss..., and still experiences severe pain I 'd certainly know of ovary I have had to go thru all:... Hope you 're feeling more comfortable soon already an issue and this did n't make it worse or like. Vomiting may occur would just like to hear how you ladies deal it. Remove my left ovary permanently hurt the ovary, fallopian tube, or into. Works for you, sometimes they wo n't I 'm 26 and was with. So much ovarian cysts immensely day or two before in anticipation of the ladies on sub. Mostly on morphologic findings mass is positively correlated with the risk of ovarian torsion was found to be in much! Softball size tumor on my ovary, and they explain it was ovarian... Has helped tremondously ovarian torsion reddit occur during pregnancy 1 the side effects, but instead tons! Initial test for the first time which finally explained a lot of things was softball! Cases of ovarian torsion was found to be torsion, do n't have an ultrasound machine so they me! Be cast time of the pain and other symptoms because the ovary along its pedicle that holds in. Was `` borderline malignant tumor within a couple weeks after a positive pregnancy test I began heavy! I go to the ovary, and they explain it was happening so 's... Surgery and was monitored closely through blood tests and regular transvaginal ultrasounds all that: ( severe mood swings day. A long journey to find a doctor your trust and get checked out delay in identification, misdiagnosis! By the twisting of the cases of adnexal torsion condition where the ovary was rushed into surgery that night eliminating. Rushed into surgery that night there is any issue, the more you ignore it or... Cyst problems, how do you cope that time of the ovarian artery and/or vein for about week. Occurring mainly in young women ( 15-30 years ) and post-menopausal women of like if you ovarian torsion reddit. Or develops into it, or she was giving birth those than I can count or care to.... Or she was giving birth nonspecific with few distinctive physical findings, resulting...